anyone heard of this disease...it can morph into temporal cell arthritis????
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giant cell artritis?
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yes and no marie..theyre sorta stuck on it as a cause but cant pin it down....but something interesting happened this evening its an unusual disease and i discovered two of our friends have just come down with it....no relationship to each other....and i thought it strange...almost as if its like a virus or something...and you cant pass it on it seems....odd eh
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Originally posted by Mykidsmom View Posti discovered two of our friends have just come down with it....no relationship to each other....and i thought it strange...almost as if its like a virus or something...and you cant pass it on it seems....odd eh
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yea im sorta wondering about it too....its too unusual a disease for three people to come down with just like that..and the drs almost kilt me with predistone last week...im weaning off it this week its going to take 4 weeks to get off it...and one of the guys i spoke to today has just started it...none of us were even on remotely the same dose...something up eh
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Originally posted by Mykidsmom View Postyea im sorta wondering about it too....its too unusual a disease for three people to come down with just like that..and the drs almost kilt me with predistone last week...im weaning off it this week its going to take 4 weeks to get off it...and one of the guys i spoke to today has just started it...none of us were even on remotely the same dose...something up eh
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i hear ya about the steroids marie...they almost killed me last week by stopping the steroids suddenly...im back on them now but weaning off and its going to take 5-6 weeks to do that....your right awful stuff...what im worried about is the tests for this disease is vein biopsy, and mine came out negative but other tests came out positive...so they decided i need off the steroids...the other people all their tests were negative but their drs decided to leave them on the drug cos of the immediate danger of having the big stroke or losing sight...now ive already lost sight in one eye........im very confused and i think im having the rage marie lol..
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They will help you Helen,just make sure you are weaned off them,and remind your Family you will be irratible and to bear with you.You have a really great family,they'll understand.I wish you all the very best with everything Helen.You are always in my prayers.
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Yippee.........im pretty excited......my weird illnesses and odd diseases have been finally fecking diagnosed...and im not crazy...
the diagnosis is ...giant cell arthritis, which is an autoimmune disease
in the past 5 years this disease has caused heart attacks, organ failure, gallbladder explosion, temporal migrainies, cardiac arrest, and the most recent attack this week caused my heart to swell and expel the screw holding my icd in place...and also it robbed me of the sight of my left eye...it causes excessive tiredness, pain everywhere to the extent you think your going mad...it mimics so many other diseases you dont know if your coming or going...and more people in the population have it than actually have been diagnosed...women are more prone to it than men...although everyone i know with it is male..the worst thing about this disease besides the obvious is ive gained almost 50lbs in the past 5 years which is almost half of my original body weight........and i was at the stage i was starting to think maybe i am going mad....anyways just wanted to update you all and say............dont ever give up..its taken me more than 25 years to find out what my problem is.
and i got diagnosed accidentally............
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Originally posted by Mykidsmom View PostYippee.........im pretty excited......my weird illnesses and odd diseases have been finally fecking diagnosed...and im not crazy...
the diagnosis is ...giant cell arthritis, which is an autoimmune disease
in the past 5 years this disease has caused heart attacks, organ failure, gallbladder explosion, temporal migrainies, cardiac arrest, and the most recent attack this week caused my heart to swell and expel the screw holding my icd in place...and also it robbed me of the sight of my left eye...it causes excessive tiredness, pain everywhere to the extent you think your going mad...it mimics so many other diseases you dont know if your coming or going...and more people in the population have it than actually have been diagnosed...women are more prone to it than men...although everyone i know with it is male..the worst thing about this disease besides the obvious is ive gained almost 50lbs in the past 5 years which is almost half of my original body weight........and i was at the stage i was starting to think maybe i am going mad....anyways just wanted to update you all and say............dont ever give up..its taken me more than 25 years to find out what my problem is.
and i got diagnosed accidentally............
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me too marie..im sick with excitement for a while i wasnt sure if i could make it cos i couldnt move unless i was taking this predistone....and i mean walk from the kitchen to the living room lol....this morning i took the bike out.. thank god for predistone...the only thing is im getting the moon face but fuck that...thats immaterial lol...
im so happy to have a name for this now and know what im dealing with.......hugs..
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