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  • Prednistone........

    PREDNISTONE..........anyone been on this drug from hell....high dose for more than 6 weeks???? would like to hear how long it took to leave your system..........and what residual affects it had and left...

    i would greatly appreciate any input...ive weaned off the drug very quickly without dr approval.....he wanted me to do it slower...im now 4 days without the drug...

    any help would be much appreciated...you can pm me if you prefer ..thanks helen

  • #2
    Helen, love, what exactly are they treating you with this for? Inflamation of some sort? Sounds like a "miracle drug" that's prescribed for everything, from inflamation to lymphoma.

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    • #3
      some autoimmune disease they dont know the name of hehe..its attacking all the large organs, fecked up my heart and cause me to go blind in one eye.......the prednistone is almost worse than the disease.. im a week off it now and still having major side effects from it..

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      • #4
        Originally posted by Mykidsmom View Post
        some autoimmune disease they dont know the name of hehe..its attacking all the large organs, fecked up my heart and cause me to go blind in one eye.......the prednistone is almost worse than the disease.. im a week off it now and still having major side effects from it..
        Thought so... "miracle drug". They don't even know what's wrong with you, yet they put you on this garbage...

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        • #5
          Totally scary drug.
          I believe in.......

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          • #6
            Originally posted by Mykidsmom View Post
            some autoimmune disease they dont know the name of hehe..its attacking all the large organs, fecked up my heart and cause me to go blind in one eye.......the prednistone is almost worse than the disease.. im a week off it now and still having major side effects from it..
            Sounds like you are better off not taking it.

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            • #7
              I've never met anyone who could take that drug very long......side effects were too much.
              I believe in.......

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              • #8
                Originally posted by Mykidsmom View Post
                PREDNISTONE..........anyone been on this drug from hell....high dose for more than 6 weeks???? would like to hear how long it took to leave your system..........and what residual affects it had and left...

                i would greatly appreciate any input...ive weaned off the drug very quickly without dr approval.....he wanted me to do it slower...im now 4 days without the drug...

                any help would be much appreciated...you can pm me if you prefer ..thanks helen
                God, Helen, thats some drug. Found this on tinternet...
                Live, love laugh and BE HAPPY

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                • #9
                  hahaa Marie...i had every one of those side effects including not being able to actually stand..im off it now and the side effects are wearing off slowly.....on friday the dr suggested i go back on it again...cos i have other issues now and the sed rate of infection has shot up to 100%..not on yer nelly i said lol..i'll take my chances...dreadful drug..

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                  • #10
                    Helen,I hate to say this but maybe you would be better on them,or maybe they could give you something without so many side effects,some people have to take them for years.I would think your sed rate means there is something going on,infection maybe? did they explain everything to you,including not taking the steroids? I know you hate them,me too,but if they keep you alive.Of course only you can make your mind up about it all.I know you must be fed up with whole fecking medical profession by now,and rightly so,you have never got proper answers yet.You need to go on that show "Mystery Diagnosis" I really wish you all the best,honestly,I just don't want anything to happen to you,you mean a lot to all of us on here! love and hugs,Marie

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                    • #11
                      awww thanks marie your a doll...im off them now for almost 3 weeks....and every day getting a bit of the old me back again....but the big thing is the brain fog..id heard of brain fog but jesus never realized exactly what it was till i had it....total delayed reaction..unable to formulate a thought..make a decision....so with my brain fried and unable to see...never mind the standing and walking....if death comes in the door with prednistone, id tell him to feck the prednistone out and id take my chances.....yes theres some kind of infection ...but its playing around the kidney area and im hoping to see the specialist early next week..so im hopeful he'll find something.. i need Dr House hehhe...

                      for anyone on prednistone whos not having any affects id say great for you im really so happy cos its a life saver of a drug...for anyone having side effects id advise you to let your dr know cos they might have another alternative drug for you...seems my next option is chemo if the sed rate doesnt go down with kidney treatment..

                      the dr says within a couple of days of stopping prednistone the affects leave your body..but i sorta dont see how thats possible...id bloated up to almost 5 times my normal size, and now on week 3 off it im still bloated...the eye specialist says i cant have a proper eye test for almost 3 months till my eyes are free of prednistone and i have to carry a special card with me for a year in case i have an accident sos the hospital will know ive been on it.......makes you wonder eh?

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                      • #12
                        Alas, until they figure out what's wrong with you, they will try to cover their bases by giving you a drug to solve all your problems, even if it kills ya.

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                        • #13
                          Helen I have been on Methotrexate(chemo) for close to thirty years now for Psoriasis and psoriatic Arthritis,It can also have bad side effects,I have never had any myself.now you are not supposed to drink with it,but I have the odd glass of wine,or a couple of beers.The thing is everyone reacts differently to any drug.I never had the brain fog with prednisone,only evet on it for a short time,thank God,but I was very volatile on it,and would fly off the handle at the drop of a hat,also I was eating like a horse!On the other hand when my husband had his cancer he said he would try any drug to help him,even if it was expiremental.But he was in a lot of pain too.Ultimately all of us have to decide what works for us personally,And that is it,if you feel like crap taking some meds,that's not a decent quality of life,in my opinion! I hope you find the Doc that reallys helps you Helen.Good luck next week.God bless .Marie

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                          • #14
                            you said it mairin lol..sometimes the cure is worse than the disease....


                            i agree marie...you gotta do whatever you gotta do....you were very lucky with the side effects and its good to know you can take the drug without any.... i tell you id take anything as long as it gave me a pain free decent quality of life......i seem to have problems with everything i take and so far the only drugs im not having any side effects with are the heart ones....but it took trial and error to find particular drugs i didnt react too.....musta been the air in cabra west or something..

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                            • #15
                              I think some of the Cabra air blew over Finglas Helen,cause none of us are "normal" lol You look after yourself now,and get lots of sleep when you can,day or night.They say sleep helps you heal,however I bet those taking a dirt nap don't think so! lmao

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